No Help For Endometriosis

I have stage 4 endometriosis, and recently my MRI scan revealed that I have growths on my sacral ligament, lesions on my bowel which might result in bowel loss, and I live a daily life with debilitating pain. I cannot use my leg without pain and it affects my job. I previously had severe surgery resulting in a bowel resection for endometriosis.

The only way to successfully remove endometriosis lesions and endometriomas is with excision surgery, and only excision specialists can do this- gynecologists are not trained to excise endometriosis, and I have had surgery with a gynecologist who completely misdiagnosed my staging of endometriosis, and I needed surgery again that year. Why does Momentum only provide me with a list of gynecologists for endometriosis, when there are endometriosis specialists? Gynecologists can only do ablation. Ablation grows back rapidly, which will result in constant surgeries.

I now have to pay copayments for my upcoming surgery because the specialist charges above medical aid rates, yet there are no specialists offered by Momentum for endometriosis, so either way I will never be accommodated. There are only a handful of specialists in Cape Town and this specialist charges the 'lower' rate compared to others.

I disagree with this. Endometriosis needs to be recognized, excision specialists should be added to your list of providers.

Please get back to me on this. It's unfair that I have to pay so much while we're paying for a top plan, it makes no sense to me.