Decline of Synagis with con******* heart defect

I logged a complaint last year regarding the declining of a drug for my daughter called Synagis. <br> <br> As the Doctors have confirm there has been no change in my daughter heart defect and still remain inoperable. This is the why we would need to keep her healthy and prevent any virus other than taking a chance with her life and hoping for the best. <br> <br> This drug is vitally important to my daughter to stop contracting the RS virus. Which if she would get could be fatal for her. She received the drug last year that was approved via ex-gratia. I know it is a very expensive drug but that is why Medical aid is there. This is not a luxury drug it could save my daughters life. Why would you approve last year knowing that she would need the treatment up until the age of 24month then with this year decline the treatment saying it is not necessary.<br> <br> If we look at last year my daughter only ended up in hospital once thanks to the injection. Now being in the RSV season her health is at high risk. <br> <br> please look into this matter urgently.<br> <br> Regards<br> Wayne<br> <br> <br>